Batten Disease Awareness Day 2024. Governor jim pillen declared june 9 as batten disease awareness day in the state, offering a day of caring and a day of hope for families battling a terminal. On friday 9th june 2023, the national wallace monument will be illuminated orange in support of international batten disease awareness day.
This year, we’re providing a variety of activities for you to. To recognize april 3, 2024, as “batten disease awareness day” in south carolina.
Governor Jim Pillen Declared June 9 As Batten Disease Awareness Day In The State, Offering A Day Of Caring And A Day Of Hope For Families Battling A Terminal.
We are all in this together.
We’re Challenging Our Wonderful Supporters To Get Involved With This Year’s Fundraising Theme ‘B For Batten’ By Taking On A Fundraising Challenge.
This is international batten awareness day!
To Recognize April 3, 2024, As Batten Disease Awareness Day In South Carolina.
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About Us Bdsra Is Dedicated To Funding Research For Treatments And Cures, Providing Family Support Services, Advancing Education, Raising Awareness, And Advocating For.
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We Are Excited To Run/Walk And.
The campaign aims to raise.
Whereas, Batten Disease Is An Extremely Rare Genetic Disorder That Impacts The Brain.